ABSTRACT
Ethics consultation is a familiar concept to clinicians, and there are site-specific guidelines detailing procedures for both obtaining and performing these consults. Evaluative data about clinician experiences with ethics consults are becoming more extensive but information about family experiences, especially parent perceptions, of the same is lacking. Without a better understanding of those family experiences, an evidence base for ethics consultations cannot be built. This manuscript describes the reasons for obtaining this necessary information, details prior research designed to obtain knowledge about family experiences with pediatric ethics consultations, and suggests mechanisms for acquiring it.
Subject(s)
Ethics Consultation , Health Knowledge, Attitudes, Practice , Hospitals, Pediatric , Parents/psychology , Ethics Committees, Clinical , Humans , Practice Guidelines as Topic , Research , United StatesABSTRACT
This study analyzes the expectations that incoming students and faculty bring to accelerated pre-licensure education programs for second-degree students. Although research supports the congruence of expectations between students and faculty as essential to learning, anecdotal evidence and single case reports suggest there may be important discrepancies in expectations of second-degree students and their faculty. Data are intended to support curriculum review, refinement, and innovation in these programs.
Subject(s)
Attitude of Health Personnel , Dissent and Disputes , Education, Nursing, Baccalaureate/organization & administration , Education, Professional, Retraining/organization & administration , Faculty, Nursing , Students, Nursing/psychology , Adult , Connecticut , Curriculum , Faculty, Nursing/organization & administration , Female , Focus Groups , Goals , Humans , Interprofessional Relations , Male , Middle Aged , Nursing Education Research , Nursing Methodology Research , Ohio , Organizational Objectives , Pennsylvania , Qualitative Research , Students, Nursing/statistics & numerical data , Surveys and QuestionnairesABSTRACT
It would be useful to researchers and bioethicists to know more about parents' decision processes and emotional state during the time they are deciding whether to enroll their infant in a clinical trial. The aim of this research study was to discover whether parents who had been previously asked to enroll their neonates in clinical trials would have found concurrent research about their decision-making overly burdensome. Twenty-seven parents of critically ill neonates who had been approached for their child's research participation in a clinical trial were asked what they believed about the potential burden or value of being interviewed during the time of research decision-making about their infant's participation. For this qualitative descriptive study, interviews were audio-recorded, transcribed, and analyzed using content analysis techniques. Participants considered concurrent research acceptable for them but potentially problematic for others. Theories of risk preferences and social comparison might explain these findings.
